Consent Statement for Global Disability Summit Online Survey

Global Disability Summit – Young People with Disabilities

Consent Statement for online survey


 You are invited to participate in a web-based online survey on [Global Disability Summit Young People with Disabilities Survey.

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) was adopted in 2016 and was the fastest negotiated human rights treaty. The UK Department for International Development (DFID) is co-hosting the first ever Global Disability Summit alongside the International Disability Alliance (IDA) and the Government of Kenya in London on 24th July 2018. A Civil Society Forum is being held a day before the Global Summit. During the Civil Society Forum Include Me TOO and the British Council in consultation with DFID and IDA are supporting young people with disabilities to have their say as they represent their peers, children and young people with disabilities from around the globe. The partners want to hear from their peers on the issues that matter to them connecting to the themes being discussed during the Global Disability Summit.


All the responses collated from this survey will be shared with youth with disabilities during the Civil Society Forum Youth Disabilities Workshop on 23rd July 2018 who will develop the Global Disability Summit Children and Youth with Disabilities Charter from the responses and asking for a commitment to the Charter during the Global Disability Summit day on the 24th July 2018.

Include Me TOO will share the data and responses with partners Department for International Development, International Disability Alliance and British Council. Names and contact details will not be shared.

The partners want to ensure that the rights, inclusion and participation of children and youth with disabilities, rights is supported. The aim is that children and youth with disabilities have the opportunity to share what matters to them, what works and what needs to change. The survey will help us achieve this.


Your participation in this survey is voluntary. You may exit the survey at any time without penalty. You are free to decline to answer any particular question you do not wish to answer for any reason.

By participating in this survey you will help us to share a range of views from young persons with disabilities supporting us to strengthen the commitment needed in supporting young people with disabilities to be involved in decisions that affect their lives and to receive the support they need to reach their full potential.


 There are no foreseeable risks involved in participating in this study other than those encountered in day-to-day life.

There is the risk that you may find some of the questions to be sensitive.


There is the risk that some questions may cause emotional discomfort.


Some of the survey questions ask about […] and may be distressing to you as you think about your experiences.


The possible risks or discomforts of the survey are minimal. You may feel a little [uncomfortable/embarrassed/sad/tired/…] answering [personal/sensitive/many/…] survey questions.


Your survey answers will be sent to a link at where data will be stored in a password protected electronic format.

At the end of the survey you will be asked if you are interested in supporting and joining the World Disability Children & Youth Forum. If you choose to provide your contact email address Include Me TOO will keep your email on behalf of the World Disability Children & Youth Forum in a password protected electronic format. Your contact details for the forum will be kept for three years in a secure password protected electronic format. You can ask to have your contact details removed at any time.

In regards to your survey responses no names or identifying information would be included in any publications or presentations based on these data, and your responses to this survey will remain confidential.


We will keep the information you provide in the survey for up to 6 months for the sole purpose of informing discussions and commitments during the Global Disability Summit and the actions to support disability rights, equality, participation and inclusion after the summit.


If you have questions at any time about the survey or the procedures, you may contact Include Me TOO Dorothy Owen on email